Useful Links
General information - paediatric spinal cord injury
A comprehensive, new website for families facing spinal cord injury. This site contains more than 1000 videos of people injured as children, their parents, spouses and siblings, resources and advice from experts (including videos) and an invitation to participate in peer counselling amongst other things.
The Gillette’s Spinal Cord Map is an online interactive tool, suitable for teaching children about the spinal cord, different types and effects of spinal cord injury, simple ideas to support someone who has sustained a spinal cord injury and also injury prevention messages. This map may be a useful starting point for explaining spinal cord injury to a child affected, their siblings and peers at school.
Exercise, Leisure and Recreation
An Australian site that contains exercises for people with spinal cord injury (including infants and children) as well as videos (of adults) demonstrating a range of wheelchair transfer techniques.
Open to any age & skiing ability, the NSW Water Ski Federation (disabled division) offers ski days (including come-and-try days) for any person who has a physical disability or who are vision impaired. Social, fun and physical, you can can ski socially or develop your skills to ultimately compete in this sport.
Burn Rubber Burn program is a network of accessible and affordable community based gymnasiums throughout Sydney for individuals with a physical disability. The program is open to all people from the age of 14 and up and provides a great opportunity for not only extensive health benefits but is also directed at enhancing the social participation and independent functioning of its participants. It is run by specialist exercise physiologists and based in various Police Citizens Youth Clubs (PCYC’s).
Sexuality and Relationships
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Spinal Cord Injury Sex and Intimacy Forum http://www.sexsci.me/
SexSCI.me is for consumers and health professionals, to discuss concerns and issues regarding sex, intimacy and spinal cord injury and to also share tips and advice on topics relating to gender, sexual preference, parenting and fertility with each other, in a community forum. This site includes articles written by professionals with information for both men and women. It is most suitable for parents / carers seeking information about what the future may hold for their child with a spinal cord injury.
Other sites
Aimed directly at consumers, this Australian site contains loads of practical information from public toilets to flying on a plane as well as offers a range of services such as advocacy and peer support.
This Australia and New Zealand wide organisation aims to build capacity through improved communication and collaboration.
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